tag:blogger.com,1999:blog-2703865696318041433.post2709334150765151463..comments2015-08-10T07:27:50.562-07:00Comments on Jack Ryan's Journey: A title eludes me...just read!Anonymoushttp://www.blogger.com/profile/10975330133743148208noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2703865696318041433.post-25935807263703160892013-08-06T15:10:13.013-07:002013-08-06T15:10:13.013-07:00100% agree. I wrote a blog post in response to th...100% agree. I wrote a blog post in response to the article yesterday and I have a feeling that my response would have been completely different had I read more of the comments. I made the mistake of going back and reading through the comments and found myself raging mad. <br /><br />I have seen "worth" thrown around alot in various responses to the article. In actuality the author never used that word. She never discusses the costs, dollars or societal, in her opinion piece (the comments are a different story). What she does highlight is the need for parents to be better informed, something I agree with wholeheartedly. <br /><br />I really think the article brings up an issue that needs to be discussed. Its an issue that more expectant parents need to be aware of. Its an issue that no matter what decisions parents make they should be able to make them in private after receiving factual and sympathetic counseling. Alyssa Kenthttps://www.blogger.com/profile/11648297430600081935noreply@blogger.comtag:blogger.com,1999:blog-2703865696318041433.post-46263364390554733232013-08-06T14:23:51.418-07:002013-08-06T14:23:51.418-07:00I agree, the article itself didn't bother me s...I agree, the article itself didn't bother me so much. I've always been troubled by how little I knew about prematurity before Jack and how ignorant the public-at-large is concerning the issue. And actually, a lot of the comments were great. But some of them really made me nauseous. I guess what "got me" is that I never thought that I would ever need to defend our decision to save Jack or need to argue his worth with anyone. The fact that others, specifically those with no real knowledge or experience, think they can place value on him really bothered me. I really did not like the comments about the costs involved either. Jack's care since his early birth has probably neared the $1 million mark. It breaks my heart to consider that anyone would the cost was not worth his life. Anonymoushttps://www.blogger.com/profile/10975330133743148208noreply@blogger.comtag:blogger.com,1999:blog-2703865696318041433.post-9485097961967917692013-08-06T14:12:43.404-07:002013-08-06T14:12:43.404-07:00I read that article with an open mind. I know Jax&...I read that article with an open mind. I know Jax's birth at 23w3d was "risky business" and that many hospitals would not have saved him, even if we pleaded with all of our hearts. The article did not make me mad...it was the comments that got to me. People who have absolutely no experience with having to make a decision like this...and the RNs and interns and residents who see it every day and *still* believe "they" should be the ones to make the decision. I guess those people haven't met our tough little guys! And that is why it's so important for us to keep advocating. Jack (and Jax) is **totally** worth it!Anonymousnoreply@blogger.com