Lilypie Premature Baby tickers

Lilypie Premature Baby tickers

Thursday, March 28, 2013

Flashback Friday: Announcement. Announcement. ANNOUNCEMENT!

These days, I’ll do almost anything that helps me heal or make peace with my ultimately life-threatening pregnancy and Jack’s early arrival (and all that it entails).  What I’m doing today may seem trivial to some, but it is triumphant for me.  When your little one is born early or sick, there are certain typical newborn and new parent milestones that are lost and grieved in the struggle for survival and sanity.  Some of those milestones are more painfully grieved, like not taking baby home days after birth.  Others, may not be cause for trauma, but are still a loss for many.  Some of those losses are more easily healed than others.  Today, this one is easy.  For me, one of the less painful, yet still important missed milestones was sending an official birth announcement for Jack.  Heck, I don't even know if Jack's birth was in the newspaper, one of the few sections of the Sunday news that I religiously read.  Between collapsed lungs and possible heart surgery for our 2-pound babe, some milestones just weren’t going to be checked off on my list, and I’m a notorious list maker and check-off-er!  I've always loved stories and books and photos, and I had imagined all those cute little newborn photo shoots at home and at a professional studio.  I also imagined filling in Jack's baby book religiously, which became difficult since his first year didn't exactly match up with those fill-in-the-blank books.  Since Jack was in the NICU, it didn't occur to me to have a professional photographer document that time for us, so I have some very unprofessional photos from that stay...probably because I was more focused on his survival than his story, at the time.   Even after he came home, fragile lungs and on O2 with an NG tube, I was too afraid to expose him to a studio.  Since we severely limited visitors, there was no way a photographer was coming into our home either.  So Jack’s first year was well-documented…with my smart phone camera!   I've been creating photo books and developing this blog, to make sure his story is not forgotten (as if!) and we’ve had a few professional photo shoots as well after he turned one.  But, that birth announcement…well, 2 years later is too late, right?  Nope.  Jack may have arrived early, but for me, it’s never too late to proudly announce his birth.  This announcement may be late, but it's free and a limited edition of 5 in the series.  (Yes, recently, I received a random coupon from Shutterfly for 5 free cards. 

Here it is:  Jack Ryan’s Official Birth Announcement.  

Modern Aqua Birth Announcement
Create beautiful birth announcements at
View the entire collection of cards.

Tuesday, March 26, 2013

Busy Boy

Waving and saying, "Hello sun!"

Jack is a busy boy these days!  Well, he's always been busy, but now he seems to have more of a purpose and focus to that busyness.  If he's not washing dishes, then he's playing with his trucks or requesting specific episodes of "Little Einsteins" to watch.  Or he's shouting, "Kindle, Kindle!"  Yep, his vocabulary is expanding every day.  Just today, Jack played with play-doh for a good 30 minutes, played in the tub for even longer, went for a short walk, got his haircut, and managed to have 3 meals too (breakfast, snack, and lunch).  It's no wonder this little guy takes a 3 hour nap every day.  Here's a glimpse into his daily doings. 

First haircut at the salon.  Not too sure about it. 

Pre-Easter Egg Hunter

Making pizza with mommy.

Fixing his truck with a scoobaba (or screwdriver).

Chips at Aunt Becky's after a walk.

Riding the motorcycle at the CMN Miracle Party.

Loving the snow!  (Even if it is in March.)

Making faces at Stauffer's garden center.

After a Thin Mint.

I think Jack is making his case for a pet fish.

Washing Dishes!!!

Just a little bite of broccoli.

Friday, March 22, 2013

Flashback Friday: Left Behind

Look at that little face.  Can you imagine leaving him for even one day?  Can you imagine having no choice but to leave him every day for four months, without his mommy and daddy, when he was at his most fragile?   Because his home was not your home?  Because he didn’t belong to you yet?  We did that for 112 days and it still hurts my heart tremendously if I allow myself to think about it too long.  I actually have to limit myself from looking at some of Jack’s NICU pictures, because I know if I do, I’ll go down an emotional road that is sometimes better off not traveled.   I start to think about the day when another parent, heartlessly mentioned, “You know he cries a lot when you aren’t here.”  I was there sometimes 8-12 hours a day, but it was never enough.   I almost always left when he was asleep, because I never wanted him to see me walk away.  And I often didn’t visit at night, because there was something inherently wrong with leaving him when it was dark outside.   
Last night, I stayed at the hospital until 9PM (my second visit of the day), because he was just so alert and wanting to see what's going on in the NICU. I have a lot of trouble leaving him if he's awake; I definitely don't want him to see me leave so I always wait until he's asleep. (10.15.10 CarePages entry)

Or I start to feel the exact same desperation as I did the day I left the hospital, for the 100th time, without my little boy, and barely made it ¼ mile down the road before I broke down in a grocery store parking lot (me, not my car).  The feelings involved with leaving your baby, and not by choice, are difficult to describe.  It was hard on me, hard on Jeff, and I’m unfortunately imagining, hard on Jack.  Instead of it getting easier every day, it just got harder and harder to leave him behind.     
Jack is still doing very well. He's got his quiet alert moments when we play, talk, and listen to stories. He's got his fussy moments when he just wants to be held. And he's adorable as always, which makes the fussy moments that much more enjoyable. What is not so enjoyable is knowing that I'm not there to calm him or hold him during all his moments. I know a lot of people think it will be stressful for him to be home, but it's got to be better than leaving him every day for the past 85 days! (CarePages entry 11.3.10)

I worry about what it did to his sense of security*.  At a time when he was supposed to be learning about the comfort and care a mother provides, he was learning about needle sticks and tubes inserted into his mouth or nose and pain.  His nurses were great, but they also had other babies.  So there were many times that he cried and wasn’t held and comforted as he would have been by me.  When he should have been developing a sense of safety and security, he was “alone” without his parents.  No matter how wonderful & loving the nurses may have been, they were not me and not Jeff...and I will forever be devastated by this fact.   Even though I know Jack and I have an amazing bond now, there will always be a small part of me that worries what those 4 months did to him and a large part of me that will spend the rest  of his life making up for it.  Jack rarely calls for me when he is in his crib.  Is it because he thinks I won’t come, like when he was in the NICU?  Has he learned that mommy and daddy WON’T always be there for him?  He's not much of a cuddler or hugger, but he does lean on me.  Is that because he wasn't held and hugged enough in those early days?  He is in a stage now where he seeks me out, just to make sure I’m still there and I always say, “I’m right here, buddy.”  And he repeats it, "Right here, bubby" and somehow, it makes my heart sing and suffer at the same time.  Because there was a time, when I wasn’t there.  And I should have been. 

 Jack's doing well...but his mommy is losing it! I have to say that I can hardly stand to go the hospital and once I'm there, I hate to leave. I'm just about sick every time I have to leave Jack and it gets worse each time. (10.23.10 CarePages entry)

* "Bonding is the intense attachment that develops between parents and their baby. It makes parents want to shower their baby with love and affection and to protect and nourish their little one. Bonding gets parents up in the middle of the night to feed their hungry baby and makes them attentive to the baby's wide range of cries.
Scientists are still learning a lot about bonding. They know that the strong ties between parents and their child provide the baby's first model for intimate relationships and foster a sense of security and positive self-esteem. And parents' responsiveness to an infant's signals can affect the child's social and cognitive development."